Pat Buckley (Cork East, Sinn Fein) | Oireachtas source

Twenty-five families are waiting. One family in particular came from Youghal to the gates of Leinster House and they were in contact with me recently. The HSE approved Spinraza in June, the Minister welcomed that in July, but the families still have not got it. Some of the families have contacted me and asked me if I could get a final date for when this vital medicine will be provided. All people want is clarity on what date they will have some relief and solace for their families.

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