Caoimhghín Ó Caoláin (Cavan-Monaghan, Sinn Fein) | Oireachtas source

Obviously, I fully support Deputy Niamh Smyth's appeal but the issue I need to raise is one the Tánaiste addressed earlier during Leaders' Questions It is with regard to the anguish and stress that parents of children with spinal muscular atrophy must cope with as day by day they watch their child denied what is potentially a life-saving drug. With the advent of the approval of Spinraza for reimbursement in England and Wales, we are now one of only two countries in the European Union that has yet to take this decision. The other is Estonia. To be quick, the Tánaiste is the Deputy Prime Minister of the State. If he will not intervene otherwise, as he has explained earlier, will he at least reflect the frustration that he claims he has himself with this process and urge a conclusion with approval for Spinraza reimbursement issuing immediately?

See this speech in context