Gino Kenny (Dublin Mid West, People Before Profit Alliance) | Oireachtas source

I wish to raise access to the drug Spinraza for 25 young people in Ireland. A number of Deputies have raised this issue in the last nine months. I understand the HSE leadership met on Thursday to give a final decision for the families. I was speaking to Lisa McHugh Farley in Clondalkin and her son Glen is eagerly awaiting access to this drug. The 25 families want to know what the decision is very quickly because this has been a prolonged process.

See this speech in context