Dara Calleary (Mayo, Fianna Fail) | Oireachtas source

On 20 September I raised the issue of the drug called Spinraza with the Tánaiste. It was subsequently raised by my party leader, Deputy Micheál Martin, and Deputies Lisa Chambers and Curran. Some five months have passed and the 25 children I referred to that day are still waiting. They do not have time to wait. It has been approved in 20 EU countries. The latest country to approve it is our neighbour, Scotland. When will we give information to the 25 families, who do not have time to wait?

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