John Curran (Dublin Mid West, Fianna Fail) | Oireachtas source

Last week, I raised the availability of Spinraza for children suffering with spinal muscular atrophy, SMA. The Minister of State, Deputy Jim Daly, replied, indicating that discussions were ongoing between the pharmaceutical company and the HSE. He also indicated that the talks were coming towards an end and that progress might be made. He did not indicate what the progress was. The reason I raise the question again is that parents are waiting. I am happy to have the Minister of State, Deputy Jim Daly, reply and give an update on the progress and whether there is likely to be a decision this side of Christmas.

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