John Curran (Dublin Mid West, Fianna Fail) | Oireachtas source

I previously raised with the Taoiseach the situation of two boys in my constituency, Sam and Glen, who suffer from spinal muscular atrophy. With their parents and 20 other children around the country, they are looking for access to a drug called Spinraza. The Taoiseach indicated that it had not been approved by the HSE. In subsequent replies, he indicated that the matter was under review and negotiation between the HSE and the drugs company, which has given these children some hope that they will get access to the drug in a short time. Were they in many other European countries, they would have access to it today. Will the Taoiseach update the House on where the negotiations stand and whether there is any prospect of the drug being made available before the end of the year?

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