Lisa Chambers (Mayo, Fianna Fail) | Oireachtas source

This is the fifth or sixth occasion on which Deputy Curran and I have raised this issue. We were told that a decision was imminent and the families would be contacted. However, they are still waiting for an answer as to whether the drug will be approved. Other countries in the European Union already provide this drug. These children are waiting. The drug is effective and it works. The families even say that if in time it is shown not to work for their child, they are happy to give that up; they just want the chance. It is extremely reasonable. The very least the Government can do is to respond and give them a decision.

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