John Curran (Dublin Mid West, Fianna Fail) | Oireachtas source

A total of 25 children in the country suffer with spinal muscular atrophy. Sam and Glen both live in my area. It is a degenerative condition. There is hope for them and there is treatment called Spinraza. I have raised the question in the House before and I have been told that following the evaluation process it has not been approved.

If it has not been approved but is available in other European countries, do we need to review the evaluation process? Page 64 of the programme for Government commits to engaging with European partners to make these types of drugs available. Our partners in Europe have made it available but we have not.

While all this goes on, can we look at having a compassionate programme made available for these children?

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