Dara Calleary (Mayo, Fianna Fail) | Oireachtas source

Over the past number of weeks, many Deputies have raised the issue of Spinraza and the stress the parents of these 25 children are under while awaiting a decision. The stress these families and their children are under is intolerable, knowing that this drug has huge potential for their lives. At this stage, given that we signed up to this deal with the Benelux countries, surely there is a better way of making decisions like this. I plead with the Taoiseach to try to make a personal intervention and to try to get a decision as soon as possible in order that we can alleviate this dreadful stress on these 25 families.

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