Alan Kelly (Tipperary, Labour) | Oireachtas source

I do not want to be here in a month asking the same question on the anniversary of Marion Kelly's passing. She died on 1 December, and she was in my office not long before she passed away. This is important for those who are fighting on behalf of the remaining 19 patients. I also acknowledge the work of Deputy Brassil on this matter. He tabled a parliamentary question to which the Minister gave a disappointing response, which is why I am speaking about this matter today. I have also discussed the matter with the Kelly family, which has contacted me on a regular basis.

This must be concluded before the first anniversary of Marion Kelly's death. Has the drug been paid for to date? Have all the administration costs been met? Will the Minister ensure the HSE communicates directly with the Alpha-1 group and with the Kelly family on the current status of the negotiations? I am losing confidence that the people dealing with this from the HSE are prioritising it to the level required.

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