Alan Kelly (Tipperary, Labour) | Oireachtas source

I appreciate the honesty with which the Minister has addressed the question. Unfortunately, we have been at this juncture for a long time, and it is frustrating. The Minister met the family in April. We had a commitment from the HSE that there was going to be an agreement on the 19 patients quickly. Meetings were supposed to take place quickly but they did not happen. A meeting took place in June, and there was a follow-up meeting to that. There is frustration that this process has been going on for a year, and we have had no guarantee that these 19 patients will continue on the drug and that it will be administered in the correct way. We need the guarantee. We cannot allow these 19 patients, and those who need this drug, to continue to live in limbo. It is not acceptable. To be frank, the family of Marion Kelly are exhausted; phone calls and emails are not being answered anymore

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