Simon Harris (Wicklow, Fine Gael) | Oireachtas source

I thank Deputy Kenny for raising the issue. He is entirely correct. When it comes to a number of rare diseases, which affect a small number of people in the country, the quality-adjusted life year, QALI, test alone will never make it possible. As he correctly said, Professor Barry, the head of the National Centre for Pharmacoeconomics, NCPE, is undertaking a working group on this issue. Recently, I highlighted to him the priority I attach to this and I expect its work to commence very shortly. I will keep the Deputy informed.

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