Martin Kenny (Sligo-Leitrim, Sinn Fein) | Oireachtas source

As Deputy McGrath outlined, a group from the Irish MPS Society, including children with Morquio syndrome and their parents, met with Deputies this morning and are in the Public Gallery now. The group includes two children who are being treated with Vimizim. We all meet thousands of people in the course of our life, especially those of us here in the Oireachtas, but sometimes one meets a person who is unique and whose humanity shines through. That is the case with the two children we met this morning. The Minister for Health has agreed to meet the delegation for a few minutes, which I am delighted to hear, but I urge the Taoiseach, too, to meet the children before they leave. It is always clear when we meet people who are special and different. I ask that the Taoiseach listen for five minutes to what these two children have to say. If he does so, I am absolutely confident he will ensure the drug is approved for all children with this illness. It is totally wrong that they have been left in their current situation.

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