Gino Kenny (Dublin Mid West, People Before Profit Alliance) | Oireachtas source

I would like to raise the issue of the way in which drugs to treat rare illnesses such as phenylketonuria, cystic fibrosis and muscular dystrophy are assessed by the National Centre for Pharmacoeconomics. There seems to be a bias against people with rare illnesses in this country. Not only are they discriminated against by their condition, which they have not chosen, but they are also punished by not being able to avail of drugs to which they should be entitled.

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