Michael Healy-Rae (Kerry, Independent) | Oireachtas source

My question relates to the programme for Government. As the Taoiseach knows, phenylketonuria is where sufferers carry a gene that inhibits them from breaking down the protein. The inability to break down the protein and the resulting build-up of it in the brain to toxic levels can lead to brain damage, seizures and behavioural problems. Kuvan is the only treatment available for PKU, but it was recently rejected as a candidate for funding by the National Centre for Pharmacoeconomics. In The Kerrymantoday, I read about the Quilter family from Lixnaw, County Kerry. The daughter, Maeve, who is only 11 years of age, is a PKU sufferer. This drug would help her and many more. What does the Taoiseach propose to do to help those who are suffering from this rare disorder, especially the young children?

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