Dáil debates

Wednesday, 4 October 2017

Questions on Promised Legislation

 

1:10 pm

Photo of Gerry AdamsGerry Adams (Louth, Sinn Fein) | Oireachtas source

Ba mhaith liom ceist a chur ar an Taoiseach faoin mhéid atá i gclár an Rialtais i dtaobh an drugs payment scheme. Tá an clár an-soiléir faoi shaoránaigh mhíchumasacha. The programme for Government is very clear that citizens with disabilities should be supported. Yesterday I attended a briefing in the audiovisual room hosted by Seanadóir Rose Conway-Walsh attended by the parents of three wee boys, William, Cathal and Lewis. We were told the drug Translarna could make a real difference for these children. Five year old Lewis has been eligible for this medication for almost a year but he has not been able to access it as the Health Service Executive is refusing to reimburse the cost. Three year old Cathal, we are told, will lose the use of his legs and may need ventilation to help him breathe, and eventually his heart and lungs will fail.

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