John Brassil (Kerry, Fianna Fail) | Oireachtas source

On page 71 of the programme for Government, it is stated that, throughout their lives, people with disabilities should be supported in maximising their potential. In light of the decision by the health authority to refuse access to Translarna for children suffering from Duchenne muscular dystrophy, what prospect have those children of receiving the drug and increasing their ability to stay ambulant for up to ten or 15 years of their lives? It is a very serious issue. We have got some meetings with PTC Therapeutics and the families involved later today. As we speak, the avenues of communication seem to be closed off. I ask the Taoiseach to liaise with his colleague the Minister for Health, Deputy Harris, to try to get this issue back on the agenda and resolved.

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