Gino Kenny (Dublin Mid West, People Before Profit Alliance) | Oireachtas source

The Government made a commitment on the high cost of medicines in the programme for Government to drive down the cost of drugs and medicines. The reason I raised this issue is because of a lady called Charlotte Connolly. I am not sure many people know her, but she is the only person in Ireland suffering from Degos disease. Her husband was here yesterday. He walked from Mullingar to Dáil Éireann to highlight Charlotte's situation. She wants access to a drug called Soliris on an experimental basis to treat her illness. At present the drug costs €400,000 per year per patient. It is made by a company in the Taoiseach's constituency, Alexion Pharmaceuticals. Will the Taoiseach give a commitment to give Charlotte access to the drug? The Minister for Health should meet the family to clarify the issue.

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