Enda Kenny (Mayo, Fine Gael) | Oireachtas source

I agree this is a matter that has been examined over the years. The Government has adopted the findings of Eamon Stack's report in respect of access to services in schools for children with intellectual challenges which will eliminate many of the problems that have been around for a long time. The HSE is currently engaged in a reconfiguration of the existing therapy resources which are available to teams and spread geographically for children from birth to 18 years. As the Deputy is aware, the objective of that model of assessment is to provide a single and clear referral pathway for all children, irrespective of their disability, where they live or the school they attend, in order to streamline this. Evidence from the areas will show that implementation of the programme will have a positive impact. It has taken quite a while to get to this point.

Deputy Martin mentioned respite. The HSE and the agencies it funds provide respite care to children and adults with disabilities. It is clear there are challenges. Respite can occur in a variety of settings for any length of time depending on the needs of the family and the resources that are available. It is not always centre-based. It can be provided in a number of ways, including out of home, in home, home to home, home support and family support. As part of the continuum of services for families, respite helps prevent out-of-home placements, preserves the family unit and supports family stability. While the situation outlined by the Deputy is not as satisfactory as one would wish, the HSE is aware of the importance of the provision of respite to families of both children and adults with disabilities and the impact of the absence of respite service provision on other services.

It does not necessarily cease once a person reaches the age of 18 but this will depend on the availability of resources. As a result of the number of respite beds being used for long-term residential placements, the number of people with disabilities in receipt of residential respite services and the corresponding number of respite nights are down against previous activity. This reflects new models of respite care that are now being delivered to home respite and extended day care, etc.

The Deputy raises an important consideration, particularly for the families and the young people involved. However, it depends on the availability of trained staff and resources which is why the structure has changed. It is hoped that over time it will be far more streamlined and deliver a more effective service.

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