Dáil debates

Wednesday, 5 April 2017

Questions on Promised Legislation

 

1:15 pm

Photo of John CurranJohn Curran (Dublin Mid West, Fianna Fail) | Oireachtas source

There is a young lady in the Gallery today, Ms Jillian McNulty, who suffers with cystic fibrosis and has been a long-time campaigner for Orkambi. However, her visit here today is on a slightly different and more positive outlook. Having been in hospital for many years and unable to work, she is now in a position, as a result of Orkambi, where her life is changed and she is trying to get back into the workforce. On behalf of her and others who are suffering from cystic fibrosis, is the Taoiseach in a position to update us on the progress being made to make Orkambi available to those who would benefit from it? I recognise it is probably not an appropriate question for the Order of Business.

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