Dáil debates

Wednesday, 1 March 2017

Questions on Promised Legislation

 

1:25 pm

Photo of Marc MacSharryMarc MacSharry (Sligo-Leitrim, Fianna Fail) | Oireachtas source

This is relevant to pages 59 and 64 of the programme for Government. Deputy Micheál Martin raised the issue of Orkambi during Leaders' Questions. I raised it two weeks ago and again yesterday. The Taoiseach made fun of, giggled over and made comparisons with comments of a derogatory nature by other Deputies.

As of 15 minutes ago, the office of the Minister, the HSE or the Department of Health had not made contact with Vertex since 3 February 2017.

The Taoiseach was correct yesterday when he said the Minister had arranged a meeting with the people associated with the cystic fibrosis campaign on Monday. The essence of that meeting was that the Minister asked them to cancel today's protest. As we speak, those people are assembling outside of the building. The clear message is that they are not going to go away.

Despite waffle about protracted and detailed contractual negotiations, Vertex confirmed to me that the last contact it had was on 3 February. We are dealing with children's health and, in effect, their lives. The Taoiseach and the Minister, Deputy Harris, are both gentlemen outside the ring. It is time they manned up, told people the truth and had the decency to tell them what is going on.

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