Enda Kenny (Mayo, Fine Gael) | Oireachtas source

What the Minister wants to do is future proof the quality of life for patients who in this case have cystic fibrosis. That is the right path to follow. No other category of patients has ever been future proofed in this way. What needs to be dealt with now is the finalisation of the contractual and commercial details of the arrangements for Kalydeco, Orkambi and whatever other pipeline drugs come on the scene for cystic fibrosis sufferers. The Minister expects to conclude this process in a matter of weeks. It will not be concluded today or tomorrow. In respect of cystic fibrosis patients, the article today expresses very clearly the impact on their lives of both Kalydeco and Orkambi. It is very important that we have a pipeline for the future that will guarantee that those who suffer from cystic fibrosis have whatever degree of certainty we can give them for the future in respect of their treatment and, as a consequence, for the improvement in the quality of their lives. For this reason, the Minister is working very hard to finalise the commercial and contractual details for the future of cystic fibrosis patients.

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