Noel Rock (Dublin North West, Fine Gael) | Oireachtas source

I thank the Minister of State for addressing these concerns. I know that, like myself, she cares about those who are affected by this condition and that she places a great deal of emphasis and importance on resolving this issue. Even though this condition affects a relatively small number of people, it has had a serious impact on their lives. As the years are progressing and as these people are getting older, we are beginning to see how it has a deep impact on their lives.

I welcome the Minister of State's response. I am grateful that progress is being made. I would like to see more progress being made throughout the year. I would appreciate if I could be kept updated on this matter because it is an important one for the families to whom I have spoken. I will speak to them again having got the Minister of State's response and I hope they will be satisfied also. I believe we are making progress on this important matter. If the required level of progress is made, I will be delighted with that, but if it is not, I will be happy to raise this issue again in the future.

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