Enda Kenny (Mayo, Fine Gael) | Oireachtas source

I want to see Mary Gorman, John Duggan and the others involved being treated with this drug. The position is that Alexion Pharmaceuticals is charging €400,000 per annum for it. The engagement is aimed at seeing whether that price can be reduced. The Deputy previously made a point about the e-mail. We have invested €10 million to enable a number of people to be put on a programme where one can plot the progress and benefits of treatment with the drug for this category. I am disappointed that Alexion Pharmaceuticals has not reached a decision that would allow for the treatment of these patients more quickly and at a more reasonable cost. We will continue to engage and, if the Deputy gives me the telephone number of the good lady involved, I will call her myself.

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