James Reilly (Dublin North, Fine Gael)

I accept the Minister of State's bona fides in this regard. However, the question is when action will be taken on behalf of those who suffer this life-threatening illness. Time is not on their side. Many of the people I met at the beginning of last year have lost their sons. How many more will lose sons before we take action? I know we are in a financial crisis but we need to deal with this issue.

I want to mention Deputy Joe McHugh, who is involved in this issue and would be present today if he were not on paternity leave. On a lighter note, perhaps the Minister of State would join me in congratulating Joe and Olwyn on the arrival of young Darragh Thomas McHugh.

To come back to the main question, this is a heart-rending issue. I would like to support the Minister of State and the Minister in trying to find the funds to make this possible for these children.

See this speech in context