Finian McGrath (Dublin North Central, Independent)

I support the specific call in the motion for a 34 bed unit for cystic fibrosis patients at St. Vincent's hospital. I welcome the decision made by the Minister on this unit but I am concerned about the lack of a commitment to a 34 bed unit and day care centre for cystic fibrosis patients. In my discussions with two taoisigh and various Ministers, we all agreed on the need for such a unit. Late last night, I tried again to have a commitment to a 34 bed unit included in the Government amendment to the motion and in the Minister's speech but, sadly, this did not happen. I feel betrayed that the Government did not include the phrase "34 bed unit" in its amendment.

My duty is to support the 1,161 cystic fibrosis patients in this country. It is unacceptable that patients have to appear on talk shows to demand their rights as citizens. I commend the staff at St. Vincent's hospital, and Charlie Gallagher in particular, on the great work they are doing. I also commend Gerard McElvaney and his team at Beaumont hospital on their dedication and hard work. It is up to us as legislators to support these professionals and the cystic fibrosis families. It is urgent that we do so in view of the 25 people who died from the disease last year.

It is unacceptable that cystic fibrosis patients are at risk of cross-infections in our hospitals. This is the main reason 34 on-suite rooms and a dedicated day centre are needed. I am concerned that elements in the HSE are telling the Minister what she should do. This policy has to be led by the Minister and it is up to the Government to fund and direct the HSE accordingly.

Two years ago, I was promised a designated national centre for cystic fibrosis at St. Vincent's hospital. Approximately 300 patients use this service, 10% of whom are in the hospital at any given time.

I commend the Cystic Fibrosis Association of Ireland on its hard work and urge the Government to heed the views of parents, doctors and patients. This motion is about building a quality health service for all cystic fibrosis patients.

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