Oireachtas Joint and Select Committees

Tuesday, 18 November 2025

Joint Oireachtas Committee on the Implementation of the Good Friday Agreement

All-Island Cancer Research Institute: Discussion

2:00 am

Professor Frank Casey:

I thank Mr. Hughes for his question. I want to come back to the issue of data because, as was mentioned, it is a key theme. If we are thinking of delivering healthcare on an all-island basis for any disease, then we need to be able to share that data. I hope that the key to that will be the electronic healthcare record that, as Professor Hanna said, is available in all hospitals in the North now and will be in the new children's hospital. In order to even plan healthcare for the future, we need all-island data. We need data on every patient on the island. The Scandinavian countries have a unique identifier that can track a patient from the time of birth through to old age. If we are thinking ambitiously, that is really where we need to go. The best investment we could make in terms of improving our healthcare and health policy would be to have that kinds of system to track a patient from birth to adulthood.

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