Professor Frank Casey:

The first thing, as we have seen from the patients' representative here, is to involve them. This cannot be done without patients being reassured. What we found from our experience is that the patients made a huge contribution to the shape of what was set up. We sometimes think we know what people need but the things that are important to them are sometimes very different: things like travel, having accommodation, financial implications - all those worries. If we were to have a group focusing on this, that group should incorporate not just our medics and our nurses but also parents and all the people who will be involved in any change of service because there will always be anxiety around that.