Dr. Kris Shrishak:

One thing that can be done is how you actively involve the people and then by involving them also get their consent so that they are actually contributing to the development of systems. That way they are giving their data. This is a concept that is known as data donation. That is one way to get active consent of specific data about people who are not represented in the data set. For instance, what the state can do is create mechanisms where data donation can be done. Of course there needs to be consent but there also needs to be trust in the infrastructure where people are donating their data. Who is going to run that infrastructure? Do they already have interactions with the State body or the regulator? All of this will also play for the state to get that data.