Oireachtas Joint and Select Committees
Wednesday, 15 October 2025
Joint Oireachtas Committee on Health
Treatment of Rare Diseases: Discussion
2:00 am
Professor Michael Barry:
I will tell the Deputy how decisions are made. Decisions are made by the drugs group, which is a wide group of people from the health service, including lay people. They make recommendations, not me. I do not make recommendations. They make recommendations to the HSE senior leadership team and the HSE senior leadership team ultimately makes the decision on reimbursement based on what they have been informed. That is how it is done. If one wants to look at it again then, essentially, it has to be looked at through the HSE leadership team.
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