Oireachtas Joint and Select Committees
Wednesday, 15 October 2025
Joint Oireachtas Committee on Health
Treatment of Rare Diseases: Discussion
2:00 am
Professor Michael Barry:
Yes. This is very important. We made a decision many years ago to put timelines on our website so people know exactly where it is and what is going on until the time our assessment is over. The HSE has now introduced a system where you can track the drug throughout the process. I very much welcome that. It is up and running now so we can see it. I get it. A lot of people would have come to me and asked where it was in the system, that they could not see it, but now they can, and that is a good development. Things are changing and they are getting better. There are massive challenges but we will deal with them as best we can.
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