Oireachtas Joint and Select Committees

Wednesday, 15 October 2025

Joint Oireachtas Committee on Health

Treatment of Rare Diseases: Discussion

2:00 am

Professor Michael Barry:

First, we make our report public. It is on the website so anybody can look at it and the timelines are clearly outlined. Next, we send that report to the HSE and it goes before the drugs group, which make the reimbursement recommendation. The senior leadership, usually very quickly, respond to that. Once we have done our bit, we send it immediately to the drugs group, and then a recommendation is made and it is usually fairly quickly.

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