Oireachtas Joint and Select Committees

Wednesday, 15 October 2025

Joint Oireachtas Committee on Health

Treatment of Rare Diseases: Discussion

2:00 am

Photo of Maria ByrneMaria Byrne (Fine Gael)

It is now mid-October but we are no further on. Professor Barry has said his organisation is having engagement. How long will that engagement take because many children are waiting to receive this drug?

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