Oireachtas Joint and Select Committees
Wednesday, 15 October 2025
Joint Oireachtas Committee on Health
Treatment of Rare Diseases: Discussion
2:00 am
Manus Boyle (Fine Gael)
Earlier we talked about the early access scheme. We, as a committee, should push really hard for an early access scheme. I say that because of the experience of my cousin, who has now passed on. He was in America and the medical profession did everything they could for him when he was ill. He told me himself that he participated in clinical trials. He received this, that and the other, and he said he was proud of himself for doing that. So we must try and see what is going to work here too.
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