Oireachtas Joint and Select Committees

Wednesday, 15 October 2025

Joint Oireachtas Committee on Health

Treatment of Rare Diseases: Discussion

2:00 am

Manus Boyle (Fine Gael)

As my fellow members of this committee said earlier, it should not be down to politicians to come in here to push for a drug for a child. I believe that the system is wrong. We should have a system whereby if a doctor recommends a person gets a drug that politicians are taken out of the equation. I know no more about givinostat than the professor would know about fishing or anything like that so the current position is totally wrong.

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