Oireachtas Joint and Select Committees

Wednesday, 15 October 2025

Joint Oireachtas Committee on Health

Treatment of Rare Diseases: Discussion

2:00 am

Ms Vicky McGrath:

Discussions about pricing are not the remit of patients. We are looking for the best healthcare available to other citizens of the EU, other citizens of Europe, and what can be done to make those available in Ireland. I have heard a lot of "stuff is available here and not there".

We are way behind our comparators in Europe and we have to do something to turn this on its head. I think an early access programme is the start of that. Let all of those negotiations happen in parallel. Argue over pricing, fine, but keep us out of it and make sure that we have access to these medications.

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