Oireachtas Joint and Select Committees

Wednesday, 15 October 2025

Joint Oireachtas Committee on Health

Treatment of Rare Diseases: Discussion

2:00 am

Professor Michael Barry:

It is. Fifteen years ago, we thought statin therapy was expensive at €500 per patient per year. We are now talking about millions.

I have always said there is a way to get your drug reimbursed quickly in this country, and that is to price it fairly. Drugs do not have to go into a full health technology assessment. We have a rapid review system which is done in 30 days. In fact, we did givinostat in nine days. If they come in and price it appropriately at that point in time, we say yes. That is all I will say.

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