Anne Rabbitte (Fianna Fail)

I was a little struck earlier by Professor Barry's over-and-back with Senator Clonan. The reason I was a little struck is that families play a huge role in this. They are the principal caregivers, and for decisions to be made without their having a role in the decision process is a little disingenuous. It goes back to the rare diseases technical review committee and families, but who invites them in? The review committee invites them in, but in what way does that process work? I do not understand it.