Oireachtas Joint and Select Committees
Wednesday, 15 October 2025
Joint Oireachtas Committee on Health
Treatment of Rare Diseases: Discussion
2:00 am
Anne Rabbitte (Fianna Fail)
Perfect. I thank Professor Barry.
As my colleague, Deputy Daly, said earlier, this is a very difficult subject and what we all want is a fair, timely system. I pay tribute to Rare Diseases Ireland and the "I am Number 17" campaign. I also acknowledge that extra funding has been got and Professor Barry's team has grown. This is not easy for anyone, but it is important that the team is growing and more people leading to more outcomes is what we hope for. I have a question I want to leave until last but I am going to tell the witnesses what it is so that they can think about it. I do not want them to answer until the end. My colleague, Deputy O'Sullivan, who is beside me, has a Bill on orphan drugs going through the Dáil. I want to know whether the witnesses are aware of it and if they have an opinion on it. I will leave that with them until the end.
Do the witnesses think the current system is doing a good job? That is a yes-no question.
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