Oireachtas Joint and Select Committees

Wednesday, 15 October 2025

Joint Oireachtas Committee on Health

Treatment of Rare Diseases: Discussion

2:00 am

Photo of Pádraig RicePádraig Rice (Cork South-Central, Social Democrats)

I heard about a case of an Irish person who gave birth abroad and had newborn screening done there. That screening picked up a case of SMA, but if the child been born here, that would not have been picked up. The person was then able to get earlier intervention. It is unfortunate we are seeing that.

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