Oireachtas Joint and Select Committees
Wednesday, 15 October 2025
Joint Oireachtas Committee on Health
Treatment of Rare Diseases: Discussion
2:00 am
Ms Vicky McGrath:
Yes. The approval process, or the approval provided by the national screening advisory committee, NSAC, and the Minister, was 2-plus years ago and then there was the allocation of budgets, etc. It should be up soon, but I am not 100% sure. I have not heard recently about when those should be implemented. It is a travesty that we are still waiting. It needs to be activated far earlier than it has been in this country.
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