Oireachtas Joint and Select Committees

Wednesday, 15 October 2025

Joint Oireachtas Committee on Health

Treatment of Rare Diseases: Discussion

2:00 am

Ms Vicky McGrath:

Yes. The approval process, or the approval provided by the national screening advisory committee, NSAC, and the Minister, was 2-plus years ago and then there was the allocation of budgets, etc. It should be up soon, but I am not 100% sure. I have not heard recently about when those should be implemented. It is a travesty that we are still waiting. It needs to be activated far earlier than it has been in this country.

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