Oireachtas Joint and Select Committees

Wednesday, 15 October 2025

Joint Oireachtas Committee on Health

Treatment of Rare Diseases: Discussion

2:00 am

Photo of Colm BurkeColm Burke (Cork North-Central, Fine Gael)

On assessments, there is the whole issue of, for argument's sake, a medication that is only suitable for 50 people a year. Can we join with other countries in sharing and processing the information so that rather than Ireland looking at ten cases with 50 patients in each case, we would share information with other countries? Ireland would take two of those and another country would take another two, so we are not replicating what has been done. Where are we with that?

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