Oireachtas Joint and Select Committees

Wednesday, 15 October 2025

Joint Oireachtas Committee on Health

Treatment of Rare Diseases: Discussion

2:00 am

Photo of Sorca ClarkeSorca Clarke (Longford-Westmeath, Sinn Fein)

This indicates to me that there is a fundamental flaw. The systems in place simply are not working. You should be able to go to your doctor and for the doctor to say you need a certain medication, and it is kept out of the political sphere or spectrum where the decisions are made by those who have the greatest access to information and knowledge of the condition and the medication. This says to me that there is a structural flaw in the reimbursement system.

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