Oireachtas Joint and Select Committees

Wednesday, 15 October 2025

Joint Oireachtas Committee on Health

Treatment of Rare Diseases: Discussion

2:00 am

Photo of Sorca ClarkeSorca Clarke (Longford-Westmeath, Sinn Fein)

He has a path ahead of him - there is no doubt about that - but he is doing very well. How frequently do decisions like this happen, where a family or patient is told they cannot get access to medication, only for it then to turn out after a little bit of political pressure - kicking, screaming, roaring and shouting - that a decision is made in their favour?

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