Dr. Rosalyn Tamming:

For the CDNT review, we have two steering groups and an advisory group. The first steering group is made up of the HSE, parents’ voices and health and social care professionals and staff representatives. We meet every six weeks to two months to share updates. Our last meeting was before we got really into this. We will be able to share some findings with the group at the next meeting. We set up the second steering group for part 3 of the review because it includes education and the NCSE. The advisory group includes parent representatives and nearly all the health and social care professionals who are involved. There is good engagement along the way. I would not say there are red-flag issues. Obviously, in the context of any review, if something is identified that gives cause for concern, you raise it. We might go to the HSE informally with our main contact there to get clarity around some issues. We have not yet got to the point where we are discussing any recommendations or anything. There will definitely be more engagement at that point. I should have said the Department of children is also on those steering groups.

The emergency planning piece is not really within our remit. I sit on the disability action plan steering group run by the Department of children. This has come up as an issue in that group. There has been a commitment to have a look to see what can be done in that regard. Maybe some money can be set aside as part of the Estimates process to do some work in that area and to develop sort of a model. There has been research work done in the past. The Trinity Centre for Ageing and Intellectual Disability has done work in this area to look at pre-planning for when something happens. There were interesting findings from that.