Professor Mary McCarron:

We also need to backstream. We are looking at people aged 40 and over and many of the health issues this population presents with are due to how they have lived their earlier years. It is the same as for the rest of us. We need to follow a younger cohort to see the transition into old age. Very often, especially for young adults with Down's syndrome, there are good services until they reach 18 years of age and then they simply fall off a cliff. They leave children's services and there is nothing for them. That is a major concern.