Oireachtas Joint and Select Committees
Wednesday, 15 May 2024
Joint Oireachtas Committee on Health
Neurology and Neurorehabilitation Healthcare Strategies: Discussion
Ms Magdalen Rogers:
Deputy Lahart's comments are well made. A line in our opening statement referred to the legacy of progress. We acknowledge the progress that has been made. An issue we wanted to highlight today was that it is a pity some of that progress is being undermined by what are, essentially, administrative issues in some cases. It is a combination of delays and the recruitment moratorium. We appreciate that there has been significant investment. Regarding the nurses the Deputy mentioned, there is a specialist nurse in Huntington's for the first time. That is a game-changer for people with Huntington's. We have a responsibility to highlight progress and the gaps that remain. I highlighted that while there is a specialist nurse for people with Huntington's, in Dublin, for the first time, a second was promised in Galway. There was great excitement that there would be a nurse in the west for Huntington's so people would not have to travel with a debilitating condition and they could be seen in Galway. Unfortunately, that nurse post is held up in the recruitment moratorium. We have a responsibility to do both. I acknowledge that. We must highlight the good work that has been done and the gaps that remain. On that positive element, the Deputy is absolutely right. We acknowledge the work of the neurology clinical programme. The current lead, Professor Sinéad Murphy, and the previous lead, Professor Orla Hardiman, really got to grips with Huntington's.
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