Oireachtas Joint and Select Committees

Wednesday, 15 May 2024

Joint Oireachtas Committee on Health

Neurology and Neurorehabilitation Healthcare Strategies: Discussion

Ms Magdalen Rogers:

Absolutely. As well as that, we are conscious that we led a very public awareness initiative around those nurses. We had expectations and commitments from patient advocates all around the country that knew and understood those nurses were coming and they are still waiting. I can say, and my colleagues would say as well, it is a very difficult conversation to have with those people as to why those nurses are not in place. To give an example, regarding the nurse for Huntington's disease in Galway, there was a huge expectation. So many services for these conditions are based in Dublin and there was huge excitement that there was going to be a nurse in Galway for Huntington's disease. Unfortunately, we are not seeing that yet. It is critical that those nurses are protected and recruited as soon as possible.

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