Oireachtas Joint and Select Committees

Wednesday, 24 April 2024

Joint Oireachtas Committee on Health

Health Services for Persons with Lung Fibrosis: Discussion

Photo of John LahartJohn Lahart (Dublin South West, Fianna Fail) | Oireachtas source

ILFA is the second group in today to mention a registry. As the Chair has said, there are groups who are regularly in here. Vision Ireland acts on behalf of people with visual impairment and sight challenges but there is no registry. We seem to depend on the census to get a picture of how many people have a certain ailment. Of course a registry is an acknowledge of numbers and if one has an acknowledgement of numbers, and names, there is a responsibility to act on that. We do not have a registry for autism. The situation is beyond bizarre.

Mr. MacAuley mentioned his brother who lives in Australia. He said that his brother is in good health and please carry all our best wishes to him. Is Mr. MacAuley aware, from chatting to his brother about his condition, of differences between the approach in Australia and here?

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