Oireachtas Joint and Select Committees
Wednesday, 24 April 2024
Joint Oireachtas Committee on Health
Health Services for Persons with Lung Fibrosis: Discussion
Seán Crowe (Dublin South West, Sinn Fein) | Oireachtas source
Let us park that issue. Maybe it is something we can follow up with the relevant authorities.
On the reimbursement, I am not asking for this now, but I am asking for some samples of the challenges that are facing people. Again, I thank Mr. Hurley for telling his story. We have had staff from the medical card section in here and it is a terminal condition. If someone has terminal cancer, he or she is automatically covered. That is something we can follow up. Then there is the cost element of it. There must be a simpler way. We are dealing with families who are in this situation where there is terminal illness. They last things they want to be doing is trying to chase this up and form-filling. That is taken as read right across the system. We get the officials in. There might be something in relation to that. On the postcode lottery aspect, this is an awful question to ask but where is the worst place to be and where are the better places to be as far as that is concerned? We had long Covid people before us last week. Again, there are problems. The Mater was mentioned today. There is a problem with the systems talking if someone's heart specialist is in the Mater and his or her lung specialist is in St. James's. Do the witnesses come across that problem? I am conscious lung fibrosis impacts on other organs as well.
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